Having an ostomy can feel like a big change in your life. But don’t worry! Many people with ostomies live happy, full lives. This guide will help you learn how to live well with your ostomy. We’ll cover everything from daily care to fun activities you can enjoy.
Getting Used to Your Ostomy
At first, having an ostomy might feel strange. Here are some tips to help you get used to it:
- Learn about your ostomy: Ask your doctor or nurse lots of questions. They can show you how to care for your ostomy and change the bag.
- Be patient: It takes time to get used to new things. Don’t worry if you make mistakes at first. You’ll get better with practice.
- Join a support group: Meeting other people with ostomies can be really helpful. They can share tips and make you feel less alone.
- Practice at home: Spend time at home getting used to your ostomy. Try on different clothes and practice changing your bag.
Taking Care of Your Ostomy
Good care of your ostomy is important for staying healthy. Here are some tips:
- Change your bag regularly: Your doctor will tell you how often to change it. Usually, it’s every 3-7 days.
- Clean the skin around your stoma: Use warm water and mild soap. Be gentle! Pat the area dry with a soft towel.
- Check for skin problems: Look for redness, rashes, or sores. Tell your doctor if you see any.
- Measure your stoma: Your stoma (the opening) can change size. Measure it often to make sure your bag fits well.
- Keep bag supplies: Always keep colostomy bag supplies handy; have extra bags, wipes, and other supplies ready.
Everyday Life with an Ostomy
Having an ostomy doesn’t mean you can’t do the things you love. Here are some tips for everyday life:
Eating and Drinking
- Eat slowly: Chew your food well and take your time eating.
- Try new foods one at a time: This helps you know if a food causes gas or other issues.
- Drink plenty of water: This helps prevent dehydration and keeps your ostomy working well.
- Be careful with some foods: Some foods like popcorn or nuts might be hard to digest. Ask your doctor which foods to avoid.
Clothing
- Wear comfy clothes: Choose clothes that don’t press too hard on your ostomy bag.
- Try high-waisted pants: These can help hide your ostomy bag.
- Use ostomy wraps: These special bands can hold your bag in place and make it less visible.
Exercise and Sports
You can still be active with an ostomy! Exercise is good for your health. Here are some tips:
- Start slow: Begin with easy exercises and slowly do more.
- Wear a support belt: This can help keep your bag in place during exercise.
- Empty your bag before working out: This prevents leaks and makes you more comfortable.
- Stay hydrated: Drink plenty of water, especially when you sweat a lot.
Many people with ostomies enjoy swimming, running, and even playing sports. Just make sure to protect your ostomy during contact sports.
Work and School
Having an ostomy doesn’t mean you can’t go to work or school. Here are some tips:
- Tell your boss or teacher: Let them know about your ostomy if you feel comfortable. They can help if you need extra bathroom breaks.
- Keep supplies at work or school: Have extra bags and wipes just in case.
- Plan your day: Think about when you’ll need to empty your bag and plan around it.
Travel
Don’t let your ostomy stop you from exploring! Here are some travel tips:
- Pack extra supplies: Bring more ostomy supplies than you think you’ll need.
- Carry supplies in your carry-on: If you’re flying, keep some supplies with you in case your luggage gets lost.
- Learn some phrases: If you’re going to a country where you don’t speak the language, learn how to say “ostomy” and “bathroom” in that language.
- Plan ahead: Know where bathrooms are on your route.
Dealing with Leaks and Odors
Leaks and smells can happen, but there are ways to manage them:
- Check your bag often: Make sure it’s sealed well.
- Use deodorant drops: These can help reduce odors.
- Carry an emergency kit: Pack extra supplies, wipes, and a change of clothes just in case.
- Eat odor-reducing foods: Some foods like yogurt and parsley can help reduce ostomy odors.
Emotional Health
Having an ostomy can affect how you feel. It’s normal to have different emotions. Here are some tips:
- Talk to someone: Share your feelings with a friend, family member, or counselor.
- Focus on the positives: Think about the good things in your life.
- Set goals: Having things to work towards can help you feel good.
- Be kind to yourself: Remember, you’re doing your best!
Relationships and Dating
Having an ostomy doesn’t mean you can’t have great relationships. Here are some tips:
- Be open: Tell your friends and loved ones about your ostomy when you feel ready.
- Educate others: Help your friends and family understand what an ostomy is and how it works.
- Dating with an ostomy: When you start dating someone new, choose a good time to tell them about your ostomy. Remember, the right person will accept you as you are.
Sleeping with an Ostomy
Getting a good night’s sleep is important. Try these tips:
- Empty your bag before bed: This reduces the chance of leaks during the night.
- Use a nighttime drainage bag: For urostomies, this can help you sleep through the night without getting up.
- Try different sleeping positions: Find the most comfortable position for you.
Bathing and Swimming
You can still enjoy water activities with an ostomy. Here’s how:
- Showering: You can shower with your ostomy bag on or off. If you shower without the bag, choose a time when your stoma is less active.
- Swimming: You can go swimming with your ostomy bag. Use waterproof tape around the edges for extra protection.
- Hot tubs: It’s usually safe to use a hot tub, but check with your doctor first.
Pregnancy and Ostomies
Many women with ostomies have healthy pregnancies. If you’re thinking about having a baby:
- Talk to your doctor: They can help you plan for a healthy pregnancy.
- Adjust your ostomy care: As your belly grows, you might need to change how you care for your ostomy.
- Stay positive: Many women have successful pregnancies and deliveries with ostomies.
When to Call the Doctor
Sometimes, you might need help from your doctor. Call them if:
- You have a fever
- Your stoma changes color (turns very red, purple, or black)
- You have bad stomach pain
- You see blood in your ostomy bag
- You have bad skin problems around your stoma
Conclusion
Living with an ostomy might seem hard at first, but many people lead full, happy lives with ostomies. Don’t forget, you’re not alone. With these tips and some practice, you can do all the things you love. Stay positive and don’t be afraid to ask for help when you need it.
Your ostomy is just one part of who you are. It doesn’t define you. With time and practice, caring for your ostomy will become a normal part of your day. Keep learning, stay positive, and enjoy life to the fullest!
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